Last Saturday I had taken Chica Marie to see the new Smurf
movie as a surprise. Her previous TSS worker met us there to reward her for
getting on green and purple at school (green means “ready to learn” and purple
means the child did something extra-special, like helped a friend). I wasn’t
even inside the house when Primero pounced on me, telling me Esperanza was in
his room asking to talk to me. She had been to the emergency room for issues
with a burst ovarian cyst and had received bad news. She has PCOS, the same
complicated, horrible disease with which I suffer. Apparently she had not
known, along with so many other problems like acne, extra hair, imbalanced
hormones, high blood sugar, extra weight, and wacky cycles, PCOS can make it
hard to get pregnant. She was distraught. So, I sat and talked to her. I
didn’t, I couldn’t sugarcoat it, none of it. I explained more about the disease
and some potential treatments, what I had tried and what I didn’t. And then I
held her while she cried and I cried along with her. No platitudes were going
to make this go away. I didn’t whisper words of false hope or flippant encouragement into her hair while
she bear-hugged me and sobbed. I told her I knew how much it hurt and how
unfair it is, how much it sucks. I told her to be kind to herself and if she
couldn’t be around someone pregnant to allow herself the space for her own
mental health. I told her the beginning is the hardest time, triggers are
literally everywhere, but time would help and the triggers would lessen. They
wouldn’t go away entirely, but they would lessen. She told me how she tried to
talk to her mom and sister about it but they didn’t understand. I explained
that for those who easily got pregnant it is as impossible to understand as it
is for us to understand easily getting pregnant. I promised her she could talk
to me anytime she needed because I do understand, I intimately know this pain
and how far it reaches into your life. I also know the very dark place it can
take you emotionally and I hope she does not go there. After we talked I felt emotionally
drained, as if talking to her had taken me back to when I was first diagnosed. But,
I was also glad I could be there for her in a way I wish someone had been there
for me in those early, dark times. In a strange way infertility is like an
unwanted sisterhood, we don’t want to be here, we don’t want anyone we know to
be here, but if we going through hell we might as well help each other along.
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I have pcos and infertility but also know several people who have it that had no problem conceiving. It increases the chance of infertility but doesn't always end there.
ReplyDeleteYes, this is true it's not an automatic side affect and I'm sure plenty of women with PCOS conceive easily and naturally. But, there are complications, due to bursting cysts, so it is likely she will struggle with infertility. And, I think knowing it's not definitive is especially cruel because it allows eternal, soul-crushing hope to eat you alive. But, that's just my own personal opinion about it....
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